Can a special needs trust support co-working spaces adapted for accessibility?

The question of whether a special needs trust can fund co-working spaces tailored for accessibility is a complex one, increasingly relevant as the nature of work evolves and the need for inclusive environments grows; however, the short answer is often yes, with careful planning and adherence to specific guidelines. Special Needs Trusts (SNTs), established to provide for individuals with disabilities without jeopardizing their eligibility for public benefits like Supplemental Security Income (SSI) and Medicaid, are governed by strict rules regarding permissible distributions. These rules generally prioritize the beneficiary’s health, education, maintenance, and support, and distributions must not disqualify them from needs-based assistance. The key is demonstrating that co-working space access falls within these allowable categories and serves the beneficiary’s overall well-being, and not simply providing a luxury or exceeding allowable resource limits.

What Expenses Qualify for SNT Distributions?

Traditionally, SNT distributions have focused on direct needs like medical bills, therapies, housing, and personal care. However, the definition of “maintenance and support” is broadening, acknowledging that meaningful engagement in the community and employment are vital components of a fulfilling life for individuals with disabilities. According to the National Disability Rights Network, approximately 65% of working-age people with disabilities are unemployed, often due to lack of accessible workplaces and supportive services. A co-working space, specifically designed for accessibility—think adjustable desks, assistive technology, quiet rooms, and on-site support staff—can directly address this barrier. The costs associated with membership, necessary equipment, and any adaptive modifications could be justifiable as “maintenance and support” if they enable the beneficiary to pursue employment, volunteer opportunities, or entrepreneurial ventures. It’s crucial to document how the co-working space directly supports these goals, and not merely provides a social or recreational outlet.

How Do SNT Funds Avoid Disqualifying Benefit Eligibility?

Maintaining eligibility for SSI and Medicaid is paramount when utilizing SNT funds. SSI has strict income and resource limits – in 2024, the resource limit for an individual is $2,000. Distributions from an SNT that are used for the beneficiary’s benefit do not count towards this resource limit. However, the IRS requires that the trust document contain a “spendthrift” clause, which prevents creditors from accessing the trust assets, and specifically prohibits the beneficiary from having direct control over the funds. The co-working space expense would need to be paid directly by the trustee, not reimbursed to the beneficiary. It’s also important to consider the “excess income” rule. If the beneficiary earns income from employment facilitated by the co-working space, a portion of that income may be subtracted from their SSI benefit. A qualified special needs attorney can navigate these complexities and structure the distributions to minimize any negative impact on benefits.

I Remember Old Man Hemlock and His Workshop…

I recall a case a few years back involving a gentleman named Arthur Hemlock, a talented woodworker with cerebral palsy. Arthur had a sizable inheritance, but his family was terrified of jeopardizing his SSI and Medicaid benefits. They initially hesitated to fund even basic tools for a small workshop in his garage, fearing it would be seen as an impermissible luxury. Arthur, however, had a passion for crafting beautiful furniture, and the family eventually worked with me to establish a carefully structured SNT. We funded the workshop, ensuring all expenses – tools, materials, even a small stipend for a helper – were paid directly by the trustee. Arthur thrived, creating custom pieces for local clients and gaining a sense of purpose and independence. He wasn’t simply receiving handouts; he was earning an income and contributing to the community, all while maintaining his essential benefits. It taught me a valuable lesson: funding meaningful activities, even those seemingly beyond basic needs, can dramatically improve quality of life without triggering benefit disqualification.

Then There Was Young Clara and the Tech Hub…

More recently, I worked with the family of Clara, a young woman with Down syndrome who dreamed of becoming a graphic designer. She was incredibly talented, but traditional workplaces weren’t equipped to support her needs. Her family decided to establish a “Miller Trust,” a type of SNT specifically designed to allow a beneficiary to earn income without losing benefits. We used funds from the trust to secure a membership at a newly opened co-working space that catered specifically to neurodiverse individuals. It featured noise-canceling booths, sensory-friendly lighting, and on-site mentors. Clara flourished, landing freelance design projects and building a portfolio. The trust covered not only her membership fees but also the cost of specialized software and training. It wasn’t just about providing a workspace; it was about investing in her skills and empowering her to achieve her full potential. She continues to thrive, a testament to the power of thoughtful planning and accessible opportunities. This experience reinforced the idea that SNTs can be powerful tools for promoting self-sufficiency and inclusion.

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